NeuroEndocrine Cancer Australia (NECA)
NeuroEndocrine Cancer Australia is the only not-for-profit medical charity providing support to Australians living with neuroendocrine cancers (NETs). We are governed by five pillars: patient support, education, research, awareness, and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families, and friends, a voice in the community and access to the care and treatment that they deserve.
NECA provide NET patients and carers with free specialist telephone support services – NET Nurse, NET Counsellor, NET Dietitian. Healthcare Professionals have access to NET resources in addition to free accredited NET education modules, In-Service Training sessions, booklets and assistance with the Optimal Care Pathway navigation.
About Neuroendocrine Cancer (NETs)
Neuroendocrine cancer is Australia’s 7th most commonly diagnosed cancer, with 5,550+ Australians diagnosed annually and 25,550+ living with NETs.
One Australian man, woman, or child is diagnosed with neuroendocrine cancer every 90 minutes, and diagnoses are on the rise.
A patient presenting with flushing, wheezing, racing heart (palpitations), or diarrhoea? Could it be neuroendocrine cancer? Learn more here.
Neuroendocrine cancer (NET) patients often have recurring symptoms resembling irritable bowel syndrome or menopause. Could it be NETs?
1 in 2 patients report being initially misdiagnosed with something other than neuroendocrine cancer and a correct diagnosis can take between 5-7 years. Learn how to diagnose and treat neuroendocrine cancer.
60% of NET patients are Stage 4 when correctly diagnosed so are no longer curable.
Main NET symptoms include:
Flushing
Wheezing
Diarrhoea
Racing heart (palpitations)
Fatigue
The Optimal Care Pathway for neuroendocrine cancer enables health services to support improved outcomes for patients, direct resourcing to create equity in access and outcomes for all.
Play video here: https://youtu.be/4ZCbbqYYw3Q
Learn more about NETs:
Free accredited HCP learning modules: https://neuroendocrine.org.au/neuroendocrine-tumour-education-course/
Order booklets and flyers for your practice: https://neuroendocrine.org.au/forhealthprofessionals/order-booklets-and-other-resources/
Request a free In-Service Training session: https://neuroendocrine.org.au/in-service-request-form/
Optimal Care Pathway Quick Reference Guide: https://cancer.org.au/assets/pdf/neuroendocrine-tumours-quick-reference-guide
Patient Referral form: https://neuroendocrine.org.au/hp-form/
Free Patient Living with NETs educational workshops: https://neuroendocrine.org.au/living-with-nets/